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About this site

by Linda Crabtree, C.M., O.Ont., O.M.C., B.A., LL.D.

Founder of CMT International 1984-2002

CMT International was founded in 1984 as a registered Canadian charitable organization dedicated to helping people with Charcot-Marie-Tooth disease (CMT) and hereditary neuropathy with liability to pressure palsies (HNPP) better cope with their disease as they went about their lives.

During the following 18 years, more than 10,000 people in more than 40 countries received information kits on CMT; conventions were held, scholarships awarded, a website went up, an e-mail chat line flourished and the organization published 103 issues of the 32-page CMT Newsletter. In 2000 it became evident that most people looking for information on CMT and HNPP were finding CMT International through the internet. Postage, printing and maintaining an office was costly and my health was such that I could no longer be part of things without a great deal of pain.

In 2002, it was decided that CMT International would cease as an entity and information from the many back issues of the CMT Newsletter, much of it written by experts on the disease, be put on a website for everyone, everywhere, free of charge.
This website will not be updated. See also the Resources/websites category on this site for other CMT websites.
The information here is just that, information. It is provided with the best intentions but it is up to you to seek out a doctor who knows CMT or is willing to educate him/herself on the topic and discuss your own personal symptoms and treatment with him or her. We cannot assume responsibility for your health, your treatment, or what you do with the information supplied in this website. We just hope the knowledge gleaned by CMT International through you, the people who have CMT and the professionals who care for us, will help you in your search to better cope with your CMT or HNPP.

All of the information on this site is protected by copyright. However it may be used elsewhere if the authors' bylines, where applicable, go with the items.

After 18 years of answering questions, I am no longer on call due to severe CMT2a2 and neuropathic pain. I am on CMTUS and keep a personal CMT and Me blog at There are many sites operating now I many countries and just by searching the internet or joining a yahoo CMT group, you can easily find information. Jan. 2011